Understanding and Using Health Experiences
Improving patient care
Edited by Sue Ziebland, Angela Coulter, Joseph D. Calabrese, and Louise Locock
Author Information
Sue Ziebland, Reader in Qualitative Health Research and Research Director of Health Experiences Research Group, Department of Primary Care Health Sciences, University of Oxford, UK,Angela Coulter, Director of Global Initiatives Informed Medical Decisions Foundation, Boston, USA and Senior Research Scientist Department of Public Health University of Oxford, UK,Joseph D. Calabrese, Lecturer in Medical Anthropology, Department of Anthropology, University College London, UK,Louise Locock, Deputy Research Director, Health Experiences Research Group, Department of Primary Care Health Sciences, University of Oxford, UK
Sue Ziebland is an Oxford University Reader in Qualitative Health Research and research director of the Health Experiences Research Group, based in the Department of Primary Care Health Sciences. She is a research fellow at Green Templeton College, Oxford with a background in medical sociology. She has worked as a researcher in the academic, NHS and voluntary sectors and has published over 100 papers and chapters in social science and health publications. Since 2000 she has worked closely with the DIPEx charity which publishes qualitative health experiences research on the websites www.healthtalkonline.org and www.youthhealthtalk.org. Sue's other research interests include people's use of the internet for health information and qualitative research methods (which she teaches at various levels).
Joseph heads the Medical Anthropology Section at the Department of Anthropology, University College London. He completed his doctoral training at the University of Chicago, and has completed fellowships in Clinical Psychology and Medical Anthropology at Harvard Medical School and was the Cannon Fellow in Patient Experiences and Health Policy at Green Templeton College, Oxford. His research focuses on ethnographic projects that produce data with clinical and anthropological value, motivated by a desire to understand cultural diversity in approaches to health and healing. His fieldwork includes two years within the Navajo Nation studying a healing movement called the Native American Church, several months spent in Haiti attending spirit possession rituals, several years studying stigma and recovery efforts among persons with severe mental illness in Chicago, and work on an ethnographic study of the experiences of psychiatric patients at various teaching hospitals in the area of Boston, USA.
Louise is Deputy Research Director at the Health Experiences Research Group (HERG), University of Oxford, and Health Experiences Fellow at the Oxford Biomedical Research Centre. After a career in NHS management, Louise completed a PhD on healthcare rationing in the NHS market at the London School of Economics, and spent time researching healthcare organization, management and change at Templeton College, Oxford and the Health Services Management Centre, University of Birmingham. Since joining HERG in 2003, she has specialized in qualitative research into personal experiences of health and illness, and has led studies on antenatal screening and motor neurone disease. She now focuses on experiences of taking part in medical research, including clinical trials and cohort studies. Louise is interested in how personal narratives can be used to improve the quality and organization of care, and is researching their use in experience-based co-design, informing NICE guidelines and NHS commissioning.
Contributors:
Claire Anderson
Professor of Social Pharmacy
Faculty of Science,
University of Nottingham, UK
Joseph D. Calabrese
Lecturer in Medical Anthropology
Department of Anthropology
University College London, UK
Angela Coulter
Director of Global Initiatives
Informed Medical Decisions Foundation,
Boston, USA and
Senior Research Scientist
Department of Public Health
University of Oxford, UK
Ray Fitzpatrick
Professor of Public Health and Primary Care
Department of Public Health
University of Oxford, UK
Bob Gann
Head of Strategy and Engagement
NHS Choices
Department of Health, UK
Ruth Garside
Senior Lecturer in Evidence Synthesis
European Centre for Environment and Human Health
Peninsula Medical School
University of Exeter, UK
Chris Graham
Director of Survey Development
Picker Institute Europe
Trisha Greenhalgh
Professor of Primary Health Care and Co-Director
Global Health, Policy and Innovation Unit
Blizard Institute, Barts and
The London School of Medicine and Dentistry, UK
Andrew Herxheimer
Clinical Pharmacologist
Emeritus Fellow
UK Cochrane Centre, Oxford, UK
Crispin Jenkinson
Director, Health Services Research Unit and
Professor of Health Services Research
Department of Public Health
University of Oxford, UK
Jenny Kitzinger
Professor of Communications Research
Director of the Health, Science, Risk,
Media Research Group
Cardiff University, UK
Louise Locock
Deputy Research Director
Health Experiences Research Group
Department of Primary Care Health Sciences
University of Oxford, UK
Fadhila Mazanderani
Lecturer in Sociology
School of Applied Social Sciences
Durham University, UK
John Powell
Senior Clinical Researcher
Department of Primary Care Health Sciences
University of Oxford and
Consultant Clinical Advisor
National Institute for Health and Clinical Excellence, UK
Glenn Robert
Professor of Healthcare Quality and Innovation
National Nursing Research Unit
King's College London, UK
Sara Ryan
Senior Researcher
Health Experiences Research Group
University of Oxford, UK
Fiona Stevenson
Senior Lecturer in Medical Sociology
Department of Primary Care and Population Sciences
Royal Free and University College London Medical School, UK
Penny Woods
Chief Executive
British Lung Foundation, UK
Sue Ziebland
Reader in Qualitative Health Research and
Research Director of Health Experiences Research Group
Department of Primary Care Health Sciences
University of Oxford, UK
