The Drama of DNA
Karen H. Rothenberg JD, MPA and Lynn Wein Bush PhD, MS, MA
Table of Contents
Foreword Eric D. Green, MD, PhD
Preface Karen H. Rothenberg & Lynn W. Bush
Chapter 1 SETTING THE GENOMIC STAGE:
Why Genomics, Why Narratives, Why Now?
Exploring Ethical, Psychosocial & Policy Challenges of Next-Gen Sequencing
Part I Narrative Genomics: Exploring Process in Context
Chapter 2 ANTICIPATING THE FUTURE:
Genomic Protocols & Ethics Consultations
Scene I The IRB Meeting
Scene II The Genomic Advisory Committee
Chapter 3 INFORMING THE FUTURE:
The Process of Consent & Disclosure of Genomic Information
Scene I The Informed Consent Process
Scene II The Return of Genomic Findings
Chapter 4 REFRAMING AN "OPEN FUTURE":
The Shifting Landscape From NBS to NBSeq
Scene I The Paradoxes of NBSeq
Scene II The Practical Concerns in "Pandora's Box"
Part II Integrating Narrative Genomics: A Case Study Drama
Chapter 5 RECONCEPTUALIZING THE PAST, PRESENT & FUTURE:
Next Gen Sequencing - "What's Next?!"
Scene I The IRB Deliberation
Scene II The Informed Consent Process
Scene III The Clinical Ethics Consultation
Scene IV The Return of Genomic Findings
Part III Narrative Genomics on Stage: DNA, Society & Theatre
Chapter 6 DRAMATIZING THE PAST, PRESENT & FUTURE:
Theatrical Narratives from Genetics to Genomics
Section I The Theatrical Double Helix & "Chromozones"
Section II Mapping & Manipulating Fate
Section III A Genomic Crystal Ball in the Post-Mapping Decade
Online Links to Original Genomic Plays
Chapter 2 "Imagining a Genomic Crystal Ball"
Chapter 3 "It's Not That Simple!" and "It's So Complicated!!" (sequel)
Chapter 4 "The Paradoxes in Pandora's Box" and "Paradoxes Within Pandora's Box" (fuller version)
Chapter 5 "What's Next?!"