Textbook of Palliative Care Communication

Edited by Elaine Wittenberg, PhD, Betty R. Ferrell, RN, PhD, MA, FAAN, FPCN, CHPN, Joy Goldsmith, PhD, Thomas Smith, MD, Sandra Ragan, MD, Myra Glajchen, and The Rev. George Handzo

Textbook of Palliative Care Communication

Edited by Elaine Wittenberg, PhD, Betty R. Ferrell, RN, PhD, MA, FAAN, FPCN, CHPN, Joy Goldsmith, PhD, Thomas Smith, MD, Sandra Ragan, MD, Myra Glajchen, and The Rev. George Handzo

Description

The Textbook of Palliative Care Communication is the authoritative text on communication in palliative care, providing a compilation of international and interdisciplinary perspectives. This volume was uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, and it unites clinicians with academic researchers interested in the study of communication. By featuring practical conversation and curriculum tools stemming from research, this text integrates scholarship and inquiry into translatable content that others can use to improve their practice, teach skills to others, and engage in patient-centered communication. The volume begins by defining communication, explicating debatable issues in research, and highlighting specific approaches to studying communication in a palliative care context. Chapters focus on health literacy and cultural communication, patient and family communication, barriers and approaches to discussing palliative care with specific patient populations, pain, life support, advance care planning, and quality of life topics such as sexuality, spirituality, hope, and grief. Team communication in various care settings is outlined, and current research and education for healthcare professionals are summarized. Unique to this volume are chapters on conducting communication research, both qualitatively and quantitatively, to promote further research in palliative care.

Textbook of Palliative Care Communication

Edited by Elaine Wittenberg, PhD, Betty R. Ferrell, RN, PhD, MA, FAAN, FPCN, CHPN, Joy Goldsmith, PhD, Thomas Smith, MD, Sandra Ragan, MD, Myra Glajchen, and The Rev. George Handzo

Author Information

Elaine Wittenberg is an Associate Professor of Nursing Research and Education at City of Hope National Medical Center in Duarte, California.

Betty R. Ferrell is a Professor and the Director of Nursing Rearch and Education at City of Hope National Medical Center in Durate, California.

Joy Goldsmith is an Assistant Professor in the Department of Communication at the University of Memphis in Memphis, Tennessee.

Thomas Smith is the Director of Palliative Medicine and Professor of Oncology at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins Hospital in Baltimore, Maryland.

Sandra L. Ragan is a Professor Emerita in the Department of Communication at the University of Oklahoma in Norman, Oklahoma.

Myra Glajchen is the Director of Medical Education at the MJHS Institute for Innovation in Palliative Care and an Assistant Professor of Family and Social Medicine at the Albert Einstein College of Medicine in New York, New York.

George Handzo is the Director of Health Services, Research, and Quality at Healthcare Chaplaincy in New York, New York.

Contributors:

Terrance L. Albrecht, PhD, Professor
Population Studies and Disparities Research Program
Department of Oncology
Wayne State University
School of Medicine/Karmanos Cancer Institute
Detroit, Michigan

Terry Altilio, LCSW, ACSW
Mount Sinai Beth Israel Medical Center
Department of Pain Medicine and Palliative Care
New York, New York

Anne Arber PhD, MSc, RN
Senior Lecturer
Faculty of Health and Medical Sciences
University of Surrey
Guildford, United Kingdon

Robert Arnold, MD
Leo H. Criep Chair of Patient Care
Professor of Medicine
Chief of Palliative Care and Medical Ethics
Director, Institute for Doctor-Patient Communication
University of Pittsburgh School of Medicine
Medical Director, UPMC Palliative and Supportive Institute
UPMC Montefiore
Pittsburgh, Pennsylvania

Wayne A. Beach, PhD
Professor of Communication
San Diego State University
San Diego, California

Jeanine Blackford, PhD RN
School of Nursing and Midwifery
College of Science, Health, and Engineering
La Trobe University
Melbourne, Australia

Barton Bobb, MSN, FNP-BC, ACHPN
Nurse Practitioner
Division of Hematology/Oncology and Palliative Care
VCU Thomas Palliative Unit
Richmond, Virginia

Joann Bodurtha, MD, MPH
Department of Pediatrics
Johns Hopkins Children's Center
McKusick-Nathans Institute of Genetic Medicine
Johns Hopkins School of Medicine
Baltimore, Maryland

John G. Cagle, PhD, MSW
University of Maryland, Baltimore
School of Social Work
Baltimore, Maryland

Carey Candrian PhD
Assistant Professor
Division of General Internal Medicine
University of Colorado
Aurora, Colorado

Mollie Rose Canzona, ABD
Department of Communication
George Mason University
Fairfax, Virginia

Wen-ying Sylvia Chou, PhD, MPH
Health Communication and Informatics Research Branch
Behavior Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Rockville, Maryland

John D. Chovan, PhD, DNP, RN, CNP, CNS, PMHNP-BC, PMHCNS-BC, ACHPN, AHN-BC
Department of Nursing
Otterbein University
Westerville, Ohio

Nancy Clifton-Hawkins, MPH MCHES
Department of Supportive Care Medicine
City of Hope
Duarte, California

Rhonda S. Cooper, MDiv, BCC
Department of Spiritual Care and Chaplaincy
The Sidney Kimmel Comprehensive Cancer Center
Johns Hopkins
Baltimore, Maryland

Rosalie Corona, PhD
Department of Psychology
Virginia Commonwealth University
Richmond, Virginia

Nessa Coyle, RN, PhD, FAAN
Palliative Care and Ethics Consultant
New York, New York

Patrick Coyne, MSN, ACHPN, ACNS-BC, FAAN, FPCN
Clinical Director
VCU Thomas Palliative Unit
Division of Hematology/Oncology and Palliative Care
VCU Thomas Palliative Unit
Richmond, Virginia

Laura Crocitto MD MHA
Physician Advisor
City of Hope
Duarte, California

Constance Dahlin, ANP-BC, ACHPN, FPCN, FAAN
Palliative Care Consultant
North Shore, Massachusetts
Director of Professional Practice
Pittsburgh, Pennsylvania
Palliative Care Nurse Practitioner
North Shore Medical Center
Salem, Massachusetts

Stephanie Davidson, Psy.D
Clinical Psychologist
Memory Training Centers of America
Los Angeles, California
President
Rowan Center for Behavioral Medicine
Burbank, California

Marleah Dean, PhD
Assistant Professor
Department of Communication
University of South Florida
Tampa, Florida

Patrick J. Dillon, PhD
Assistant Professor
Department of Communication
University of Memphis
Memphis, Tennessee

William Dixon, DMin MDiv
Department of Pastoral Care
Johns Hopkins Hospital
Baltimore, Maryland

Matthew Doolittle, MD
Department of Psychiatry and Behavioral Sciences
Memorial Sloan Kettering Cancer Center
New York, New York

David M. Dozier, PhD
Professor
School of Journalism and Media Studies
San Diego State University
San Diego, California

Susan Eggly, PhD
Associate Professor Fage-Butler
Department of Oncology
Population Studies and Disparities Research Program
Wayne State University
School of Medicine
Karmanos Cancer Institute
Detroit, Michigan

Anna Ferguson, RN, BSN
Research Nurse
Johns Hopkins Sidney Kimmel Comprehensive Cancer Center Baltimore, Maryland

Betty Ferrell, RN, PHD, MA, FAAN, FPCN, CHPN
City of Hope Comprehensive Cancer Center
Beckman Research Institute
Nursing Research and Education
Duarte, California

Lyle Fettig, MD
Assistant Professor of Clinical Medicine
Indiana University School of Medicine
Indianapolis, Indiana

Jeanelle Folbrecht, PhD
Psychologist
City of Hope Medical Center
Duarte, California

Elissa Foster, Ph.D.
College of Communication
DePaul University
Chicago, Illinois

Jennifer Gabbard, MD
Post-Doctoral Fellow
Division of Geriatric Medicine and Gerontology
Johns Hopkins
Baltimore, Maryland

Mariela Gallo, MPH CHES
Department of Supportive Care Medicine
City of Hope
Duarte, California

Les Gallo-Silver, LCSW-R
Associate Professor
LaGuardia Community College
Long Island City, New York

Niharika Ganta, MD MPH
Brookdale Department of Geriatrics and Palliative Medicine
Icahn School of Medicine at Mount Sinai
New York, New York

Catherine F. Garlid, MDiv, BCC, ACPE
Director of Spiritual Care
Maine Medical Center
Portland, Maine

Anna Gaysynsky, MPH
Health Communication and Informatics Research Branch
Behavior Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Rockville, Maryland

Laura P. Gelfman, MD
Brookdale Department of Geriatrics and Palliative Medicine
Icahn School of Medicine at Mount Sinai
New York, New York

Susan B. Gerbino, PhD, LCSW
Clinical Associate Professor
Silver School of Social Work
New York University
New York, New York

Myra Glajchen, BSW, MSW, DSW
Director of Medical Education
Institute for Innovation in Palliative Care
MJHS Hospice and Palliative Care
New York, New York

Dawn Gross, MD PhD
Department of Supportive Care Medicine
City of Hope
Duarte, California

Jillian Gustin, MD
The Ohio State University Wexner Medical Center
Division of Palliative Medicine
Department of Internal Medicine
Columbus, Ohio

Kyle Gutzmer, MA
Doctoral Candidate
University of California, San Diego School of Medicine,
Department of Family and Preventive Medicine
San Diego State University Graduate School of Public Health
San Diego, California

Lauren M. Hamel, PhD
Post-Doctoral Fellow
Department of Oncology
Population Studies and Disparities Research Program
Wayne State University
School of Medicine/Karmanos Cancer Institute
Detroit, Michigan

Barbara Anderson Head, PhD, CHPN, ACSW, FPCN
Associate Professor
Interdisciplinary Program for Palliative Care and Chronic Illness
University of Louisville School of Medicine
Louisville, Kentucky

Jenny Hynson, MBBS, FRACP, PhD
Medical Director
Victorian Paediatric Palliative Care Program
The Royal Children's Hospital
Melbourne, Victoria, Australia

Matilde Nisbeth Jensen, PhD
Health Communication Project Group
Department of Business Communication
School of Business and Social Sciences
Aarhus University
Aarhus, Denmark

Barbara L. Jones, PhD, MSW
Assistant Dean for Health Affairs and Associate Professor
Co-Director, The Institute for Grief, Loss, and Family Survival
University of Texas Austin School of Social Work
Austin, Texas

Rebecca A. Kirch, JD
Director of Quality of Life and Survivorship
American Cancer Society
Washington, District of Columbia

Timothy W. Kirk, PhD
Department of History and Philosophy
City University of New York, York College
New York, New York

Louise Knight, MSW, LCSW-C, OSW-C
Director, Harry J. Duffey Family Patient and Family Services Program
Sidney Kimmel Comprehensive Cancer Center
Johns Hopkins University
Baltimore, Maryland

Kendra D. Koch, MA
PhD Student
University of Texas School of Social Work
Austin, Texas

Gary L. Kreps, PhD
Distinguished Professor
George Mason University
Fairfax, Virginia

Brittney Lee, MPH
Children's National Health Systems
Center for Translational Science
Children's Research Institute
Washington, District of Columbia

Meagan Lyon Leimena, LMSW, MPH
Mount Sinai Beth Israel Medical Center
Department of Pain Medicine and Palliative Care
New York, New York

Carol O. Long, PhD, RN, FPCN, FAAN
Co-Director
Palliative Care for Advanced Dementia
Beatitudes Campus
Phoenix, Arizona

Matthew Loscalzo, LCSW
Liliane Elkins Professor in Supportive Care Programs and Executive Director
Department of Supportive Care Medicine
City of Hope
Duarte, California

Hillary Lum, MD, PhD
Assistant Professor
Division of Geriatric Medicine
University of Colorado
Anschutz Medical Campus
Aurora, Colorado

Maureen E. Lyon, PhD
Children's National Health Systems
Center for Translational Science and Children's Research Institute
Washington, District of Columbia

Brenda L. MacArthur, MA
Department of Communication
George Mason University
Fairfax, Virginia

Pam Malloy, MN, RN, FPCN
American Association of Colleges of Nursing (AACN)
Washington, District of Columbia

Tammy Neiman, MS, RN-BC
St. Catherine University
St. Paul, Minnesota

Kathryn Neubauer, MD
Department of Pediatrics
Johns Hopkins Children's Center
Baltimore, Maryland

Danielle Noreika, MD, FACP
Medical Director
VCU Inpatient Palliative Services
Assistant Professor of Medicine
Division of Hematology/Oncology and Palliative Care
VCU Thomas Palliative Unit
Richmond, Virginia

Guadalupe R. Palos, DrPH, LMSW, RN
Clinical Research Manager
Office of Cancer Survivorship
The University of Texas MD Anderson Cancer Center
Houston, Texas

Sunita K. Patel, PhD
City of Hope Medical Center
Department of Supportive Care Medicine
Duarte, California

Louis A. Penner, PhD

VJ Periyakoil, MD
Clinical Associate Professor of Medicine
Director, Stanford Palliative Care Education & Training Program
Stanford University School of Medicine
Stanford, California
Director, VA Palo Alto Inter-professional Palliative Care Fellowship Program
VA Palo Alto Health Care System
Palo Alto, California

Alexander Persoskie, PhD
Behavioral Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Rockville, Maryland

Jennifer Philip PhD, FAChPM, MMed, Grad Dip Pall Med, MBBS
Associate Professor
Deputy Director
Palliative Medicine and Centre for Palliative Care
St Vincent's Hospital
Fitzroy, Victoria Australia

Fiona Poland, PhD, MAEcon, BA Econ (Hons)
Professor of Social Research Methodology
School of Health Sciences
Queen's Building
University of East Anglia
Norwich, Norfolk
England, United Kingdom

Paul Posadzki, PhD, MSc, BSc
Researcher in Alcohol Synthesis
The Centre for Public Health
Liverpool John Moores University
Liverpool, United Kingdom

Athena du Pré, PhD
Department of Communication
University of West Florida
Pensacola, Florida

Maryjo Prince-Paul, PhD, APRN, ACHPN, FPCN
Assistant Professor
Frances Payne Bolton School of Nursing
Case Western Reserve University
Cleveland, Ohio

James D. Robinson, PhD
University of Dayton
Dayton, Ohio

Lori A. Roscoe, PhD
Associate Professor
Department of Communication
University of South Florida
Tampa, Florida

Tara J. Schapmire, PhD, MSSW, CSW, CCM, OSW-C
Assistant Professor
University of Louisville School of Medicine
Interdisciplinary Program for Palliative Care and Chronic Illness
Louisville, Kentucky

Blaire Schembari, MA
Children's National Health Systems
Center for Translational Science
Children's Research Institute
Washington, District of Columbia

Peter Selwyn, MD
Montefiore Medical Center
Albert Einstein College of Medicine
Bronx, New York

Lillie D. Shockney, RN, BS, MAS
University Distinguished Service Associate Professor of Breast Cancer
Departments of Surgery and Oncology
Associate Professor of Medicine
Departments of Surgery, Oncology & Gynecology, and Obstetrics
Johns Hopkins University School of Nursing
Administrative Director, Johns Hopkins Breast Center
Director, Cancer Survivorship Programs
Sidney Kimmel Cancer Center
Baltimore, Maryland

Shane Sinclair, PhD
Faculty of Nursing
University of Calgary
Calgary, Alberta, Canada

Katie H. Stowers, DO
University of Texas Health Science Center San Antonio
Division of Geriatrics, Gerontology, Palliative Medicine
San Antonio, Texas

E. Alessandra Strada, PhD, MSCP, FT, CH
Director of Integrative Medicine and Bereavement Services
Institute for Innovation in Palliative Care
Metropolitan Jewish Hospice and Palliative Care
New York City, New York
Adjunct Associate Professor
California Institute of Integral Studies
Adjunct Professor of Psychopharmacology
Alliant University, San Francisco
San Francisco, California

Annette F. Street, BEd(Hons), PhD
Emeritus Professor
Palliative Care Unit, Department of Public Health,
College of Science, Health, and Engineering
La Trobe University
Melbourne, Australia

Richard L. Street Jr., PhD
Professor of Communication
Texas A&M University
Professor of Medicine
Baylor College of Medicine
Director of the Health Decision-Making and Communication Program
Houston Center for Innovations in Healthcare Quality and Safety
Houston, Texas

Teresa Thompson, PhD
University of Dayton
Dayton, Ohio

Brenda Thomson, RN, BSN, PHN, MSN
Andrew Thurston, MD
Clinical Assistant Professor of Medicine
Medical Director of Palliative Care, UPMC-Mercy
UPMC Palliative and Supportive Institute
UPMC Section of Palliative Care and Medical Ethics
Pittsburgh, Pennsylvania

Melinda M. Villagran, PhD
Department of Communication Studies
Texas State University
San Marcos, Texas

Charles F. von Gunten, MD, PhD
OhioHealth Kobacker House
Columbus, Ohio

Karen S. Vrtunski MSSA, LISW-S, ACHP-SW
Clinical Resource Education Counselor
Hospice of the Western Reserve
Cleveland, Ohio

Jennifer Weil MBBS (hons.), FRACP, FAChPM
Palliative Care Physician Palliative Medicine and Centre for Palliative Care
St. Vincent's Hospital
Fitzroy, Victoria, Australia

Kaila Williams, MSW
The ALS Association Florida Chapter
Tampa, Florida

Finly Zachariah, MD
Angelika A. Zollfrank, MDiv, BCC, ACPE
Coordinator of Clinical Pastoral Education
Yale New Haven Hospital
New Haven, Connecticut