Psychosocial Issues in Palliative Care

A Community Based Approach for Life Limiting Illness

Third Edition

Edited by Mari Lloyd-Williams

Covers both psychological and social concerns as experienced by palliative care patients
Takes a comprehensive look at current practice and provision of support
Includes case histories to enable the reader to relate to everyday clinical problems
Features a colour plate section containing patient artwork, developed as a way of exploring distress

New to this Edition:

Takes account of recent developments in the field of service provision
Expanded to include material on community approaches and the role of volunteers in psychosocial care
Covers the issue of dignity and the requirements of the frail elderly
Also considers the needs of families supporting terminally ill patients

Psychosocial Issues in Palliative Care

A Community Based Approach for Life Limiting Illness

Third Edition

Edited by Mari Lloyd-Williams

Description

Caring for terminally ill patients and their families is challenging. Patients with life limiting illness require the skills of many professionals but also the support of their community. While most clinicians are comfortable in assessing a broad range of physical problems, it is often the psychosocial issues that prove the most complex. These issues range from psychosocial assessment to the treatment and care of patients with life limiting illnesses. Evaluating emotional, social and spiritual needs, in particular, requires excellent teamwork.

This fully-updated and expanded new edition takes a comprehensive look at current practice and provision of psychosocial support as applied to a range of palliative care patients. A number of important areas are covered including community approaches of psychosocial care, neonatal palliative care, the provision of psychosocial care to families, the role of volunteers in supporting palliative care professionals, and the needs of the frail elderly, marginalised patients, and those with dementia.

Including multiple case study examples, this highly practical text examines current literature and evidence to demonstrate the best research-based practice in psychosocial care. It is an essential resource for professionals working within hospitals and communities in the fields of medicine, nursing, social work, chaplaincy, counselling, primary care, and mental health.

Psychosocial Issues in Palliative Care

A Community Based Approach for Life Limiting Illness

Third Edition

Edited by Mari Lloyd-Williams

1. The public health end-of-life care movement: History, principles, and styles of practice, Aliki Karapliagou, Allan Kellehear, and Klaus Wegleitner
2. Communication and psychosocial issues within neonatal palliative care, Alexandra Mancini and Paula Abramson
3. The call to social inclusion: Psychosocial care for the marginalized in society, Philip J. Larkin
4. Psychosocial care in diverse communities and encouraging communities to support each other, Linda McEnhill
5. Models of psychosocial care for patients and their families: The role of volunteers in supporting psychosocial needs, Nigel Hartley
6. Dementia, multimorbidity and frailty, Karen Harrison Dening
7. Psychosocial care of families in palliative care, David W. Kissane
8. The meaning of dignity in psychosocial care, Susan McClement
9. Diagnosis, assessment, and treatment of depression in advanced disease, Matthew Hotopf
10. Psychotherapeutic interventions, Luigi Grassi, Maria Giulia Nanni, and Rosangela Caruso
11. Spiritual care, Mark Cobb
12. Diagnosis of Prolonged Grief Disorder (PGD), Allison M. Marziliano, Wendy Lichtenthal, and Holly G. Prigerson

Psychosocial Issues in Palliative Care

A Community Based Approach for Life Limiting Illness

Third Edition

Edited by Mari Lloyd-Williams

Author Information

Mari Lloyd-Williams, Professor and Consultant in Palliative Medicine, University of Liverpool

Professor Mari Lloyd-Williams qualified from Leicester University medical school. She was appointed Consultant and Honorary Senior Lecturer to the University of Leicester Hospitals Trust and LOROs Hospice prior to moving to the University of Liverpool as Consultant and Senior Lecturer. ln 2003 Mari was promoted to a personal chair. She has published over 150 papers and lectures both nationally and internationally and is lead of the highly successful Academic Palliative and Supportive Care Studies Group. Mari has served on several national committees and working parties and lives with her family in North Wales where she enjoys cooking, reading and long walks in the countryside.

Contributors:

Paula Abramson, Head of Training, Child Bereavement UK, Saunderton, UK

Rosangela Caruso, Institute of Psychiatry, Department of Biomedical and Specialty Surgical Sciences, School of Medicine, University of Ferrara, and University Hospital Psychiatry Unit University Hospital and Health Trust, Ferrara, Italy

Mark Cobb, Clinical Director of Professional Services, Sheffield Teaching Hospitals NHS Foundation Trust, UK

Luigi Grassi, Institute of Psychiatry, Department of Biomedical and Specialty Surgical Sciences, School of Medicine, University of Ferrara, and University Hospital Psychiatry Unit University Hospital and Health Trust, Ferrara, Italy

Maria Giulia Nanni, Institute of Psychiatry, Department of Biomedical and Specialty Surgical Sciences, School of Medicine, University of Ferrara, and University Hospital Psychiatry Unit University Hospital and Health Trust, Ferrara, Italy

Karen Harrison Deningy, Head of Research and Publications, Dementia UK, London; Honorary Research Fellow, University of Liverpool, and Honorary Assistant Professor, School of Health Sciences, University of Nottingham, UK

Nigel Hartley, Chief Executive Officer, Earl Mountbatten Hospice, Isle of Wight, UK

Matthew Hotopf, Director, NIHR Maudsley Biomedical Research Centre, South London and Maudsley NHS Foundation Trust, and Professor of General Hospital Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London, and Honorary Consultant Liaison Psychiatrist, St Christopher's Hospice, UK

Aliki Karapliagou, Associate Fellow, Faculty of Health Sciences, University of Southampton, and Research Fellow in Applied Health Research, Faculty of Health Studies, University of Bradford, UK

Allan Kellehear, 50th Anniversary Professor (End of Life Care) and Academic Director for the Digital Health Enterprise Zone (DHEZ-Academic), Faculty of Health Studies, University of Bradford, UK

David W. Kissane, Professor and Chair, Department of Psychiatry, School of Clinical Sciences at Monash Health, Monash University, Victoria, Australia, and Professor of Psychiatry, Weill Medical College of Cornell University and Memorial Sloan-Kettering Cancer Center, New York, NY, USA

Philip J. Larkin, Professor of Clinical Nursing (Palliative Care), UCD School of Nursing, Midwifery and Health Systems and Our Lady's Hospice & Care Services, and Associate Dean for Taught Graduate Studies, Head of Subject for Children's Nursing, UCD College of Health Sciences, Dublin, Republic of Ireland

Wendy Lichtenthal, Assistant Attending Psychologist and Director, Bereavement Clinic, Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA

Alexandra Mancini, Pan London Lead Nurse for Neonatal Palliative Care, Chelsea and Westminster Foundation Trust, London and The True Colours Trust

Allison M. Marziliano, Pre-doctoral Fellow, Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA

Susan McClementy, Professor, College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada

Linda McEnhill, Head of Supportive Care, St Joseph's Hospice, London, UK

Holly G. Prigerson, Professor of Sociology in Medicine, Joan and Sanford I. Weill Department of Medicine, Weill Cornell Medical College, New York, NY, USA

Klaus Wegleitner, Assistant Professor, Institute for Palliative Care and Organizational Ethics, Faculty of Interdisciplinary Research and Continuing Education (IFF Vienna), University of Klagenfurt, Austria