https://global.oup.com/academic/covers/pop-up/9780199829323

Pediatric Neuropsychology

Medical Advances and Lifespan Outcomes

Edited by Ida Sue Baron, PhD and Celiane Rey-Casserly, PhD

Covers historical and current medical care for both common and rare pediatric medical conditions
Updates readers on outcomes for children, once unlikely to survive, now given a chance for more optimal neuropsychological functioning
Concisely summarizes developments that have changed the course for children diagnosed with systemic and neurological medical complications
Offers perspectives from diverse disciplines in succinct chapters

Pediatric Neuropsychology

Medical Advances and Lifespan Outcomes

Edited by Ida Sue Baron, PhD and Celiane Rey-Casserly, PhD

Description

Major advances in the understanding and treatment of childhood medical disorders have contributed to markedly improved survival and reduced morbidity compared with outcomes in earlier medical care eras. As a consequence, children whose prognosis was once severe impairment or early mortality are surviving to adulthood, often facing a wide range of neuropsychological late effects. Pediatric Neuropsychology: Medical Advances and Lifespan Outcomes brings together highly respected and experienced researchers and clinicians in a volume that reviews many of these medical and psychological advances and their impact on neuropsychological development. The volume covers disorders for which neuropsychological development was previously not considered an area of likely compromise or one that would change the typical neuropsychological trajectory (chronic kidney disease, congenital heart disease, liver disease) as well as the latest updates on children with established risk of neuropsychological compromise (e.g. autism spectrum disorders, brain tumors, cerebral palsy, human immunodeficiency virus, leukemia, childhood onset multiple sclerosis, neonatal encephalopathy, phenylketonuria, preterm birth, sickle cell disease, spina bifida, and traumatic brain injury). These discussions of disorders are supplemented by important chapters that address the wider societal impact of pediatric medical disorders and associated neuropsychological issues. These chapters focus on the impact of improved rates of survival on provision of mandated services within the elementary and post-secondary educational settings, on changes in statistical methodology and analyses that influence today's interpretation of research reports, and on the importance of maintaining a developmental focus regarding transitioning to adult health care, with lifelong implications for survival to older adulthood becoming a relatively newer area of training and practice.

Pediatric Neuropsychology

Medical Advances and Lifespan Outcomes

Edited by Ida Sue Baron, PhD and Celiane Rey-Casserly, PhD

Table of Contents
Section I. Medical Disorders
1) Childhood Acute Lymphoblastic Leukemia: A Lifespan Perspective
Kevin R. Krull & Tara Brinkman
2) Autism Spectrum Disorders
Lisa Joseph, David Black, & Audrey Thurm
3) Childhood Brain Tumors
Celiane Rey-Casserly
4) Cerebral Palsy
Seth Warschausky, Jacqueline N. Kaufman, & Lindsey Felix
5) Late Neurodevelopmental Outcomes in Children with Congenital Heart Disease
David C. Bellinger & Jane W. Newburger
6) Neuropsychological Outcomes of Human Immunodeficiency Virus in Childhood and
Adolescence
Nichols, Kammerer, & Patton
7) Neonatal Encephalopathy
Alex Kline, Katherine Ann Leonberger, & Ida Sue Baron
8) Neuropsychological Functioning in Chronic Kidney Disease Across the Lifespan
Stephen Hooper & Arlene C. Gerson
9) Neuropsychological Outcomes in Pediatric Liver Disease and Transplantation
Lisa Sorensen
10)Multiple Sclerosis
William MacAllister & Lana Harder
11) Phenylketonuria
Susan E. Waisbren & Kevin M. Antshel
12) Preterm Birth Outcomes in Adolescence and Young Adulthood
Ida Sue Baron, Katherine Ann Leonberger, & Margot D. Ahronovich
13) Sickle Cell Disease
Karen Wills
14) Spina Bifida/Hydrocephalus
T. Andrew Zabel, Lisa Jacobson, & E. Mark Mahone
15) Traumatic Brain Injury
Michael W. Kirkwood, Robin L. Peterson, & Keith Owen Yeates
Section II. Impact on Educational Systems
16) The Changing Face of Public Education: Meeting the Needs of
Medically Challenged Children
Ellen Goldberger, Irene Meier, & Mary Ann Panarelli
17) Transition to Higher Education for Youth with Disabilities
Lorraine E. Wolf & Sarah Kroesser
Section III. Methodological and Lifespan Developmental Considerations
18) Insignificant Statistical Significance and Other Methodological Oversights
Brandi A. Weiss
19) Bridging the Gap: Transitioning from Developmental to Adult Healthcare
Jane Holmes Bernstein & Celiane Rey-Casserly
20) Modeling Cognitive Aging Following Early CNS Injury: Reserve and the Flynn Effect
M. Douglas Ris and Merrill Hiscock

Pediatric Neuropsychology

Medical Advances and Lifespan Outcomes

Edited by Ida Sue Baron, PhD and Celiane Rey-Casserly, PhD

Author Information

Ida Sue Baron, PhDDirector of Neuropsychology and Professor of Pediatrics, Department of Pediatrics, Inova Fairfax Hospital for Children, Falls Church, VA & University of Virginia School of Medicine, Charlottesville, VACeliane Rey-Casserly, Ph.D.Assistant Professor, Department of Psychiatry, Harvard Medical SchoolAllied Staff in Pediatric Specialities, Pediatric Psychosocial Unit, Dana-Farber Cancer Institute

Contributors:

CONTRIBUTORS

Margot D. Ahronovich, M.D.
Fairfax Neonatal Associates
Inova Children's Hospital
Fairfax, VA

Kevin M. Antshel, Ph.D.
Department of Psychiatry and Behavioral Sciences
SUNY - Upstate Medical University
Syracuse, NY

Ida Sue Baron, Ph.D.
Independent Private Practice
Potomac, MD &
Department of Neurosciences
Inova Children's Hospital
Fairfax, VA

David C. Bellinger, Ph.D., M.Sc.
Department of Neurology
Children's Hospital Boston and Harvard Medical School
Department of Environmental Health
Harvard School of Public Health
Boston, MA

Jane Holmes Bernstein, Ph.D.
Department of Psychiatry
Children's Hospital/Harvard Medical School
Boston, MA

David Black, Ph.D.
Pediatrics and Developmental Neuroscience Branch
National Institute of Mental Health
Bethesda, MD

Tara Brinkman, Ph.D.
Department of Epidemiology and Cancer Control
St. Jude Children's Research Hospital
Memphis, TN

Lindsey Felix, Ph.D.
Department of Physical Medicine and Rehabilitation
University of Michigan
Ann Arbor, MI

Arlene C. Gerson, Ph.D.
Department of Pediatrics and Epidemiology
The Johns Hopkins University School of Medicine &
The Johns Hopkins Bloomberg School of Public Health
Baltimore, MD

Ellen Goldberger, Ph.D.
School Psychologist
Fairfax County Public Schools
Fairfax, VA

Lana Harder, Ph.D.
Departments of Psychiatry and Neurology
Children's Medical Center Dallas
University of Texas Southwestern Medical School
Dallas, TX

Merrill Hiscock, Ph.D.
Clinical Psychology
Developmental Psychology
Center for Neuro-Engineering & Cognitive Science
University of Texas at Austin
Austin, TX

Stephen R. Hooper, Ph.D.
Department of Psychiatry & The Carolina Institute for Developmental Disabilities
University of North Carolina School of Medicine
Chapel Hill, NC

Lisa Jacobson, Ph.D.,
Department of Neuropsychology, Kennedy Krieger Institute
Department of Psychiatry and Behavioral Sciences
Johns Hopkins University School of Medicine
Baltimore, MD

Lisa Joseph, Ph.D.
Pediatrics and Developmental Neuroscience Branch
National Institute of Mental Health
Bethesda, MD

Betsy Kammerer, Ph.D.
Department of Psychiatry
Children's Hospital/Harvard Medical School
Boston, MA

Jacqueline N. Kaufman, Ph.D.
Department of Physical Medicine and Rehabilitation
University of Michigan
Ann Arbor, MI

Michael W. Kirkwood, Ph.D.
Department of Physical Medicine & Rehabilitation
Children's Hospital Colorado
University of Colorado Denver School of Medicine
Aurora, CO

Alex Kline, M.D.
Fairfax Neonatal Associates
Inova Fairfax Hospital for Children
Fairfax, VA

Sarah Kroesser, MS.Ed.
Graduate Research Assistant
Office of Disability Services
Boston University

Kevin R. Krull, Ph.D.
Department of Epidemiology and Cancer Control
St. Jude Children's Research Hospital
Memphis, TN

Katherine Ann Leonberger, B.S.
Department of Clinical Psychology
The George Washington University
Washington, DC

William S. MacAllister, Ph.D., ABPP-CN
Department of Neurology
New York University School of Medicine
New York, NY

E. Mark Mahone, Ph.D.
Department of Neuropsychology, Kennedy Krieger Institute
Department of Psychiatry and Behavioral Sciences
Johns Hopkins University School of Medicine
Baltimore, MD

Irene Meier, Ed.D.
Director, Special Education Instruction
Fairfax County Public Schools
Fairfax, VA

Jane W. Newburger, M.D., M.P.H.
Department of Cardiology
Children's Hospital Boston
Department of Pediatrics
Harvard Medical School
Boston, MA

Sharon Nichols, Ph.D.
Department of Neurosciences
University of California, San Diego
San Diego, CA

Mary Ann Panarelli, Ed.D.
Director, Intervention and Prevention Services
Department of Special Services
Fairfax. VA

Doyle E. Patton, Ph.D.
Children's Diagnostic & Treatment Center, Inc.
Fort Lauderdale, FL

Robin L. Peterson, Ph.D.
Department of Psychology
University of Denver
Denver, CO

Celiane Rey-Casserly, Ph.D.
Department of Psychiatry
Children's Hospital Boston
Boston, MA

M. Douglas Ris, Ph.D.
Department of Pediatrics
Baylor College of Medicine
Texas Children's Hospital
Houston, TX
Lisa Sorensen, Ph.D.
Department of Clinical Psychiatry and Behavioral Sciences
Northwestern University's Feinberg School of Medicine
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, IL

Audrey Thurm, Ph.D.
Pediatrics and Developmental Neuroscience Branch
National Institute of Mental Health
Bethesda, MD

Susan Waisbren, Ph.D.
Department of Psychiatry
Department of Genetics
Children's Hospital/Harvard Medical School
Boston, MA

Seth Warschausky, Ph.D.
Department of Physical Medicine and Rehabilitation
University of Michigan
Ann Arbor, MI

Brandi A. Weiss, Ph.D.
Department of Educational Leadership
The George Washington University
Washington, D.C.

Karen E, Wills, Ph.D.
Department of Psychology
Children's Hospitals and Clinics of Minnesota
Minneapolis, MN

Lorraine E. Wolf, Ph.D.
Department of Medicine
Department of Rehabilitation Sciences
Boston University
Boston, MA 02215

Keith Owen Yeates, Ph.D.
Department of Pediatrics
The Ohio State University
Center of Biobheavioral Health
The Research Institute at Nationwide Children's Hospital
Columbus, OH

T. Andrew Zabel, Ph.D.
Department of Neuropsychology, Kennedy Krieger Institute
Department of Psychiatry and Behavioral Sciences
Johns Hopkins University School of Medicine

Pediatric Neuropsychology

Medical Advances and Lifespan Outcomes

Edited by Ida Sue Baron, PhD and Celiane Rey-Casserly, PhD

Reviews and Awards

"We are in a time of great medical advances in understanding and treating childhood medical conditions. This timely book, edited by two very experienced neuropsychologists, provides a comprehensive review of the implications of these advances for long term neuropsychological functioning. The book takes a much needed lifespan approach appealing to practitioners in both adult and child neuropsychology. What makes the book stand out is the quality of the contributors and the way the editors have ensured that the chapters are highly relevant, easy to read, and authoritative. I enjoyed reading it and will continue to use it as an important reference source." -- Jonathan Reed, Child Neuropsychologist, co-editor, Child Neuropsychology: Concepts, Theory, and Practice, Recolo, London

"This is an admirable addition to the pediatric neuropsychological literature. Readers will relish the concise, coherent presentation, as well as the specific coverage of developmental trajectories for these diseases and disorders that cannot be found in other books. Weighted Numerical Score: 100 - 5 Stars!" -- DOODY'S

"Pediatric Neuropsychology provides a framework and greater context to examine various medical conditions and the impact of those conditions and their treatment on a child's outcome. The chapters are well organized and coherent, with each medical condition chapter following a similar structure, making it easy for the reader to quickly focus on those issues most relevant to his or her interest and providing a sense of uniformity to each author's individual voice. The breadth of topics addressed in this text is impressive, and it will likely serve as a valuable reference for providers. The reader will find the medical information presented relatively easy to digest and appreciate that the writers do not expect the reader to be an expert in each topic. The relatively succinct nature of each of the chapters is a strength in the sense that the reader can digest the main points of the article without understanding all of the medical terminology." --Lisa Fitzgibbons, PsycCRITIQUES

"The recent volume Pediatric Neuropsychology Outcomes, edited by two established leaders in the field of pediatric neuropsychology, Ida Sue Baron and Celiane Rey-Casserly, is an accessible and informative work that not only provides substantive reviews of current research on various medical disorders, but also advances a timely and underemphasized theme. These chapters are all well written, and concisely review both early and more recent psychological and neuropsychological research. Because of its focused theme, Baron and Rey-Casserly's book provides a unique approach to examining trends in pediatric neuropsychology and their implications for neuropsychology as a whole. For any professionals who work with children with complex medical conditions, or who wish to understand the influence of these conditions upon the lifelong development of these individuals, this book will be a valuable resource." --David J. Marcus, Archives of Clinical Neuropsychology

"Pediatric Neuropsychology provides a framework and greater context to examine various medical conditions and the impact of those conditions and their treatment on a child's outcome. The chapters are well organized and coherent, with each medical condition chapter following a similar structure, making it easy for the reader to quickly focus on those issues most relevant to his or her interest and providing a sense of uniformity to each author's individual voice. The editors are successful in their goal of addressing the pediatric and adult practitioner audience largely because of the breadth of coverage and the organization of the book. The breadth of topics addressed in this text is impressive, and it will likely serve as a valuable reference for providers." -Lisa Fitzgibbons, PsycCRITIQUES