Palliative Care in Nephrology

Edited by Alvin H. Moss,MD, FACP, FAAHPM , Dale E. Lupu,MPH, PhD , Nancy C. Armistead,MPA , and Louis Diamond

Guides readers through the core palliative skills and knowledge needed to deliver high value care for patients with life-limiting, critical, and terminal kidney disease
Chapter topics are based on the Coalition for Supportive Care of Patients with Kidney Disease Pathways Project change package of 14 best practices
Written by a team of international leaders in kidney palliative care

Palliative Care in Nephrology

Edited by Alvin H. Moss,MD, FACP, FAAHPM , Dale E. Lupu,MPH, PhD , Nancy C. Armistead,MPA , and Louis Diamond

Description

Palliative care has become increasingly important across the spectrum of healthcare, and with it, the need for education and training of a broad range of medical practitioners not previously associated with this field of care. As part of the Integrating Palliative Care series, this volume on palliative care in nephrology guides readers through the core palliative knowledge and skills needed to deliver high value, high quality care for seriously ill patients with chronic and end-stage kidney disease. Chapters are written by a team of international leaders in kidney palliative care and are organized into sections exploring unmet supportive care needs, palliative care capacity, patient-centered care, enhanced support at the end of life, and more. Chapter topics are based on the Coalition for Supportive Care of Kidney Patients Pathways Project change package of 14 evidence-based best practices to improve the delivery of palliative care to patients with kidney disease. An overview of the future of palliative care nephrology with attention to needed policy changes rounds out the text. Palliative Care in Nephrology is an ideal resource for nephrologists, nurses, nurse practitioners, physician assistants, social workers, primary care clinicians, and other practitioners who wish to learn more about integrating individualized, patient-centered palliative care into treatment of their patients with kidney disease.

Palliative Care in Nephrology

Edited by Alvin H. Moss,MD, FACP, FAAHPM , Dale E. Lupu,MPH, PhD , Nancy C. Armistead,MPA , and Louis Diamond

Chapter 1 Overview
Section I Why We Need This Book: Unmet Supportive Care Needs of Patients with Kidney Disease
Chapter 2 Birth of a Benefit: Brief History of the ESRD Program
Nancy Armistead and Jeffrey A. Perlmutter
Chapter 3 Unmet Palliative Care Needs of Patients with Kidney Disease and Consequences
Kate Schueller and Dale Lupu
Chapter 4 Models for Operationalizing Supportive Care in Kidney Care
Dale Lupu and Emma Murphy
Section II Supportive Care Capacity-Creating the Infrastructure to Provide Kidney Supportive Care
Chapter 5 Assessing Patients' Unmet Palliative Care Needs with Tools for Assessment
Dr. Chandra Thomas and Amanda Halpin
Chapter 6 Primary Palliative Care Education for the Multidisciplinary Nephrology Team
J. Pedro Teixeira and Sara A. Combs
Chapter 7 Establishing Relationships with Specialty Palliative Care for More Complex Patient Needs
Kate Schueller and Joe Rotella
Chapter 8 Physician Wellness in Nephrology and Palliative Care
Sarah Ramer and Holly Koncicki
Section III Patient-Centered Care-Values Guide Care
Chapter 9 The Shared Decision-Making Process as the Recommended Standard for Treatment Decisions in Kidney Disease and Requisite Communication Skills to Implement the Process
Ernest I. Mandel, Jane O. Schell and Robert A. Cohen
Chapter 10 Advance care planning to elicit and respect patient values and preferences
Jean L. Holley and J. April Yasunaga
Chapter 11 Involving Family and Friends in Palliative Care for Persons with Kidney Disease
Elizabeth Anderson and Dave White
Chapter 12 The System to Implement Advance Care Planning and Make Proxies, Advance Directives, and Portable Medical Orders Available and Actionable Across Care Settings
Valerie Satkoske and Alvin H. Moss
Section IV Just Right Care-the Right Care to the Right Person at the Right time
Chapter 13 The Role of Estimating and Communicating Prognosis in Kidney Supportive Care
Bjorg Thorsteinsdottir and Michael J. Germain
Chapter 14 Active Medical Management without Dialysis for Patients with Advanced Chronic Kidney Disease
Kelly Li
Chapter 15 Systematic Pain Assessment and Management
Sara N. Davison
Chapter 16 Systematic Non-Pain Symptom Assessment and Management
Hana Yu and Jennifer S. Scherer
Chapter 17 Systematic Psychosocial and Spiritual Needs Assessment and Management
Daniel Cukor and Elissa Kozlov
Chapter 18 Geriatric Nephrology Sendromes and Assessment and Management of Cognitive Impairment
Edwina A. Brown and Osasuyi Iyasere
Chapter 19 Palliative Considerations for the Patient with Acute Kidney Injury in the Intensive Care Unit
Tamara Rubenzik and Alvin Moss
Section V Throughout the Continuum-Enhanced Support at the End of Life
Chapter 20 Coordination of Care and Care Transitions with Primary Care Clinicians, Specialty Palliative Care, and Hospice
Areeba Jawed and Joe Rotella
Chapter 21 Palliative Dialysis
Vanessa Grubbs
Chapter 22 Process of Dialysis Withdrawal for Patients Failing to Thrive on Dialysis
Daniel Lam and Rebecca J. Schmidt
Section VI The Future of Palliative Care Nephrology
Chapter 23 Ethical issues in the supportive care of patients with advanced kidney disease
Catherine R. Butler and Alvin H. Moss
Chapter 24 Transforming practice to support person-centered care for patients with advanced kidney disease
Ann M. O'Hare and Nancy Armistead

Palliative Care in Nephrology

Edited by Alvin H. Moss,MD, FACP, FAAHPM , Dale E. Lupu,MPH, PhD , Nancy C. Armistead,MPA , and Louis Diamond

Author Information

Edited by Alvin H. Moss, MD, FACP, FAAHPM, Professor, West Virginia University, Edited by Dale E. Lupu, MPH, PhD, Senior Strategic Advisor, Coalition for Supportive Care of Kidney Patients, Edited by Nancy C. Armistead, MPA, Executive Director, Mid-Atlantic Renal Coalition, and Edited by Louis Diamond, Member, Executive Committee, Coalition for Supportive Care for Kidney Disease Patients

Alvin H. Moss, MD, FACP, FAAHPM, is Professor of Medicine and Director of the Center for Health Ethics and Law at West Virginia University in Morgantown, WV. Dale E. Lupu, MPH, PhD, is Senior Strategic Advisor of the Coalition for Supportive Care of Kidney Patients and Lead Consultant and founder of Daleview Associates in Maryland. Nancy C. Armistead, MPA, is Executive Director of the Mid-Atlantic Renal Coalition in Richmond, VA. Louis Diamond, MBChB, FCP, (SA), FACP, FHIMSS, is Member of the Executive Committee for the Coalition for Supportive Care for Kidney Disease Patients.

Contributors:

Elizabeth Anderson, LCSW, DSW
Assistant Professor of Social Work
Western Carolina University
Cullowhee, NC, United States

Mark Brown, MBBS, FRACP, MD
Professor of Renal Medicine
St George Hospital & University of NSW
Sydney, Australia

Edwina A. Brown, DM(Oxon), FRCP
Consultant Nephrologist
Imperial College Renal and Transplant Centre
Hammersmith Hospital
London, United Kingdom

Catherine R. Butler, MD
Nephrologist
Kidney Clinic at Harborview
University of Washington Medicine
Seattle, WA, United States

Robert A. Cohen, MD, MSc
Nephrology Division
Beth Israel Deaconess Medical Center
Assistant Professor of Medicine
Harvard Medical School
Boston, MA, United States

Sara A. Combs, MD, MS
Assistant Professor of Medicine
Divisions of Nephrology and Palliative Care
University of New Mexico School of Medicine
Albuquerque, NM, United States

Daniel Cukor, PhD
Director, Behavioral Health
The Rogosin Institute
New York, NY, United States

Sara N. Davison, MD, MSc
Professor
Department of Medicine
Division of Nephrology and Immunology
University of Alberta
Edmonton, AB, Canada

Michael J. Germain, MD
Professor of Medicine
Tufts University
Baystate Medical Center
Springfield, MA, United States

Vanessa Grubbs, MD, MPH
Associate Professor, Medicine
UCSF School of Medicine
San Francisco, CA, United States

Amanda Halpin, MD, FRCPC
Nephrology Fellow
University of Saskatchewan
Saskatoon, Saskatchewan, Canada

Jean L. Holley, MD, FACP
Clinical Professor of Medicine
University of Illinois College of Medicine at Urbana-Champaign
Carle Illinois College of Medicine
Urbana, IL, United States

Osasuyi Iyasere, MD(Res), MRCP
Consultant Nephrologist
John Walls Renal unit
Leicester General Hospital
Leicester, United Kingdom

Areeba Jawed, MD
Assistant Professor
Wayne State University
Detroit, MI, United States

Holly Koncicki, MD, MS
Assistant Professor of Medicine (Nephrology) and Palliative Medicine
Icahn School of Medicine at Mount Sinai
New York, NY, United States

Elissa Kozlov, PhD
Instructor of Psychology in Medicine
Weill Cornell Medicine
Division of Geriatric and Palliative Medicine
New York Presbyterian Hospital
New York, NY, United States

Daniel Lam, MD
Clinical Assistant Professor
Department of Medicine
Division of Nephrology
University of Washington
Seattle, WA, United States

Kelly Li, MBBS, FRACP
Staff Nephrologist
St George Hospital
Sydney, NSW, Australia

Ernest I. Mandel, MD, SM, FASN
Program Director, BWH/MGH Joint Nephrology Fellowship Program
Instructor in Medicine, Harvard Medical School
Boston, MA, United States

Emma Murphy, NP, PhD
University of Southampton
Southampton, United States

Ann M. O'Hare, MD
Professor, Division of Nephrology
Department of Medicine
University of Washington
Seattle, WA, United States

Jeffrey A. Perlmutter, MD
Nephrology Associates of Montgomery County
Rockville, MD, United States

Sarah Ramer, MD, MS
Instructor in the Division of Geriatrics and Palliative Medicine
Department of Medicine
Weill Cornell Medical College
New York, NY, United States

Joe Rotella, MD, MBA
Clinical Assistant Professor of Medicine
University of Louisville
Louisville, KY, United States

Tamara Rubenzik, MD
Associate Physician
Division of Nephrology and Hypertension
Division of Palliative Care
UC San Diego Health
San Diego, CA, United States

Jane O. Schell, MD, MHS
Section of Palliative Care and Medical Ethics
Division of General Medicine and, Division of Renal-Electrolyte
UPMC Health System
Assistant Professor of Medicine
University of Pittsburgh School of Medicine
Pittsburgh, PA, United States

Jennifer S. Scherer, MD
Assistant Professor
Department of Medicine
NYU Langone
New York, NY, United States

Rebecca J. Schmidt, DO, FACP, FASN
Professor of Medicine
Section of Nephrology
Department of Medicine
West Virginia University School of Medicine
Morgantown, WV, United States

Kate Schueller, MD
Clinical Assistant Professor of Palliative Medicine
University of Wisconsin
Madison, WI, United States

J. Pedro Teixeira, MD
Assistant Professor of Medicine
Divisions of Nephrology and Pulmonary, Critical Care, and Sleep Medicine
University of New Mexico School of Medicine
Albuquerque, NM, United States

Chandra Thomas, MSc, MD, FRCPC
Nephrologist
Alberta Health Services
Clinical Assistant Professor
Cumming School of Medicine
University of Calgary
Calgary, Alberta, Canada

Bjorg Thorsteinsdottir, MD
Assistant Professor of Medicine and Bioethics
Division of Community Internal Medicine
Department of Medicine
Program in Bioethics and Kern Center for the Science of Health Care Delivery
Mayo Clinic
Rochester, MN, United States

Dave White
Healthcare Consultant and Patient and Family Advisor
Hillcrest Heights, MD, United States

J. April Yasunaga, MD, FACP
Clinical Assistant Professor
University of Illinois College of Medicine at Urbana-Champaign
Carle Illinois College of Medicine
Urbana, IL, United States

Hana Yu, DO
Department of Internal Medicine
UT Southwestern Medical Center
Dallas, TX, United States

Palliative Care in Nephrology

Edited by Alvin H. Moss,MD, FACP, FAAHPM , Dale E. Lupu,MPH, PhD , Nancy C. Armistead,MPA , and Louis Diamond

Reviews and Awards

"This book should be compulsory reading for any nephrologist or trainee nephrologist and would be a useful reference for palliative care physicians and their trainees. And it will be a useful resource for any and all members of the multidisciplinary nephrology team." - Roger Woodruff, IAHPC Newsletter