Palliative care for older people
A public health perspective
Edited by Lieve Van den Block, Gwenda Albers, Sandra Martins Pereira, Bregje Onwuteaka-Philipsen, Roeline Pasman, and Luc Deliens
Author Information
Edited by Lieve Van den Block, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Brussels, Belgium, Gwenda Albers, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Brussels, Belgium, Sandra Martins Pereira, Department of Public and Occupational Health, EMGO Institute for Health and Care Research, Expertise Center for Palliative Care, VU University medical center, Amsterdam, the Netherlands, Bregje Onwuteaka-Philipsen, EMGO Institute for Health and Care Research, Expertise Center for Palliative Care, VU University medical center, Amsterdam, the Netherlands, Roeline Pasman, Department of Public and Occupational Health, EMGO Institute for Health and Care Research, Expertise Center for Palliative Care, VU University medical center, Amsterdam, the Netherlands, and Luc Deliens, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Brussels, Belgium
Lieve Van den Block, MSc, PhD, is Professor of communication and education in family medicine at the Vrije Universiteit Brussel. She also works as postdoctoral researcher of the Fund for Scientific Research Flanders working in the End-of-Life Care Research Group of the Vrije Universiteit Brussel and Ghent University in Belgium where she chairs the research on palliative care for older people. She holds a Master in Clinical Psychology and a PhD in Medical Social Sciences. She coordinates the EURO SENTI-MELC study, a study occupied with monitoring end-of-life care using sentinel networks of general practitioners in Europe, and is executive coordinator of EU FP7 EURO IMPACT (2010-2014) project, a Marie Curie Initial Training Network on palliative care, and coordinator of EUFP7 PACE on Effectiveness of Palliative Care for Older People (2014-2019).
Gwenda Albers MSc, PhD, is postdoctoral research fellow on the EU FP7 EURO-IMPACT project at the Vrije Universiteit Brussels. She has a background in Health Sciences and has been involved in palliative care research since 2008. Her research has been focused on quality of life, dignity, dementia and palliative care for older people. She has been working on several projects (a.o. EU FP7 PRISMA), was a visiting researcher at King's College Cicely Saunders Institute in London and obtained her PhD in 2012 from the VU University Amsterdam.
Sandra Martins Pereira, MSc, PhD, is postdoctoral research fellow on the EU FP7 EURO-IMPACT project at the VU University medical center, EMGO Institute for Health and Care Research in Amsterdam, the Netherlands. She obtained her PhD and MSc in Bioethics, and obtained Post-Graduation in Palliative Care, Graduation in Educational Sciences and in Nursing. She is an integrated member of the Office for Research in Bioethics at the Institute of Bioethics, Catholic University of Portugal.
Bregje Onwuteaka-Philipsen, PhD, is professor of End-of-life Research at the VU university medical center, EMGO Institute for Health and Care Research in Amsterdam, the Netherlands. She leads the research group 'Public Health at the end of life' of the department of public and occupational health, is program director of research program 'Quality of Care' of the EMGO Institute, and the inter-institutional research program 'Quality of life in cancer and immunology', and board member of Expertise Center for Palliative Care. In 2008 she received a career award of the Netherlands organization of scientific research (NWO, VICI scheme) for the research program 'the patient perspective in end-of-life care: personal dignity, preferences and participation'. She has substantial experience at leading and cooperating in national and international multidisciplinary research programs and has over 200 papers in international peer reviewed journals.
Roeline Pasman, MA, PhD, is senior researcher End-of-Life Studies at the VU University medical center, EMGO Institute for Health and Care Research in Amsterdam, the Netherlands. She is trained as a nurse and has a Master in Sociology. She supervises PhD students in their qualitative and quantitative studies on different end-of-life topics (shared decision making, dignity, advance care planning, hospice care). She also participated in the EU FP7 PRISMA project and participates in the EU FP7 EURO-IMPACT project. She participates in the teaching course Qualitative Research for Health Sciences at the Vrije Universiteit Amsterdam.
Luc Deliens, PhD, Professor of Public Health and Palliative Care. He is qualified in Medical Sociology, and director of the End-of-Life Care Research Group (a multidisciplinary research team of about 40 researchers with clinical (general practitioners, clinical oncologists, geriatricians, nurses), sociological, psychological and ethical backgrounds) at the Vrije Universiteit Brussel & Ghent University, Belgium. He is Co-Chair of the European Association for Palliative Care Research Network, and Scientific Director of EU FP7 EURO-IMPACT project. He has successfully supervised 27 PhD students and is currently supervising around 20 PhD students, and published over 300 journal articles, and over 50 book chapters.
Contributors:
Gwenda Albers, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Belgium
Bárbara Antunes, Cicely Saunders Institute, King's College London, UK
Margaret P Battin, Division of Medical Ethics, University of Utah, USA
Norrhazlina Binte Ali, Tan Tock Seng Hospital, Singapore
Liesbeth Borgermans, Vrije Universiteit Brussel, Belgium
Thomas M. Carroll, General Medicine University of Rochester Medical Center, USA
Carlos Centeno, ATLANTES Program, University of Navarra, Spain
Kenneth Chambaere, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Belgium
Noreen Chan, National University Cancer Institute, Singapore
José Miguel Carrasco, Institute for Culture and Society, ATLANTES Program, University of Navarra, Spain
Joachim Cohen, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Belgium
David Currow, Flinders University, Australia
Luc Deliens, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Belgium and EMGO Institute for Health and Care Research, VU University Medical Center, the Netherlands
Karen Detering, Austin Health, Australia
Katherine Froggatt, International Observatory on End of Life Care Lancaster University, UK
Clare Gardiner, School of Nursing and Midwifery, University of Sheffield, UK
Eduardo Garralda, Institute for Culture and Society, ATLANTES Program, University of Navarra, Spain
Marie-Jose Gijsberts, EMGO Institute for Health and Care Research, VU University Medical Center, The Netherlands
Cynthia Goh, Duke-NUS Graduate Medical School Singapore, National Cancer Center Singapore, National University of Singapore, Singapore
Merryn Gott, School of Nursing, The University of Auckland, New Zealand
Liz Gwyther, Hospice Palliative Care Association South Africa, South Africa
Marjolein Gysels, Cicely Saunders Institute, King's College London, UK
Richard Harding, Cicely Saunders Institute, King's College London, UK
Agnes van der Heide, Erasmus University, The Netherlands
Lilian Hidalgo, OncoSalud, Peru
Irene Higginson, Cicely Saunders Institute, King's College London, UK
Christine Ingleton, School of Nursing and Midwifery, University of Sheffield, UK
Allan Kellehear, School of Health & Education, Middlesex University, UK
Liliana de Lima, International Association for Hospice and Palliative Care, USA
Diane Meier, Mount Sinai School of Medicine, USA
Sumytra Menon, Lien Centre for Palliative Care, Duke-National University of Singapore Graduate Medical School, Singapore
Rocio Morante, SaludExpertos, Peru
Hazel Morbey, International Observatory on End of Life Care Lancaster University, UK
Güldem Ökem, Center for European Policy Studies, Belgium
Bregje Onwuteaka-Philipsen, EMGO Institute for Health and Care Research, Expertise Center for Palliative Care
VU University Medical Center, The Netherlands
Katherine Ornstein, Icahn School of Medicine at Mount Sinai, USA
Anne-Sophie Parent, AGE platform Europe, Belgium
Jose Parodi, Universidad de San Martin de Porres, Peru
Roeline Pasman, EMGO Institute for Health and Care Research, Expertise Center for Palliative Care, VU University Medical Center, The Netherlands
Sheila Payne, International Observatory on End of Life Care Lancaster University, UK
Sandra Martins Pereira, EMGO Institute for Health and Care Research, Expertise Center for Palliative Care, VU University Medical Center, The Netherlands
Ruth Piers, Ghent University, Belgium
Kristian Pollock, University of Nottingham, Queen's Medical Centre, UK
Richard A. Powell, Global Health Researcher, Kenya, Formerly Director of Research and Learning, African Palliative Care Association, Kampala, Uganda
Jane Philips, The Cunningham Centre for Palliative Care and The University of Notre Dame, Australia
Timothy Quill, Center for Ethics, Humanities and Palliative Care, University of Rochester School of Medicine, USA
Tony Ryan, School of Nursing and Midwifery, University of Sheffield, UK
Jennifer S Shaw, University of Utah School of Medicine, USA
William Silvester, Respecting Patient Choices Programme & Austin Health, Australia
Joyce Simard, School of Nursing and Midwifery, University of West Sidney, Australia
Jane Seymour, Faculty of Medicine & Health Sciences, University of Nottingham, UK
Lieve Van den Block, End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Belgium
Nele Van den Noortgate, Ghent University, Belgium
Liesbeth Van Vliet, Cicely Saunders Institute, King's College London, UK
Ladislav Volicer, School of Ageing Studies, University of South Florida, USA
Hubertus JM Vrijhoef, Saw Swee Hock School of Public Health, National University of Singapore, Singapore
André Vyt, Artevelde University College and University of Ghent, Belgium
Kathrin Woitha, Institute for Culture and Society, ATLANTES Program, University of Navarra, Spain
