Oxford Textbook of Palliative Care for Children

Edited by Richard Hain, Clinical Lead, Welsh Paediatric Palliative Medicine Managed Clinical Network; Visiting Professor, University of Glamorgan; and Honorary Senior Lecturer, Bangor University, Wales, UK, Ann Goldman, Paediatrician and Palliative Care Specialist, London, UK, Adam Rapoport, Medical Director, Paediatric Advanced Care Team (PACT),, The Hospital for Sick Children (SickKids), Canada, and Michelle Meiring, Course Convenor, Division of Palliative Medicine, School of Public Health and Family Medicine, University of Capetown, South Africa

Richard Hain is a Consultant and Clinical Lead in Paediatric Palliative Medicine in Wales. His clinical post is based at the Children's Hospital in Cardiff and he provides an all Wales specialist service via a managed clinical network. He also provides a secondary service for patients in Cardiff and the Vale University Health Board. Richard's academic background is varied and includes postgraduate degrees in pharmacology, professional education, and ethics and theology. He has co-authored over fifty research and review articles, four books on children's palliative medicine and a large number of book chapters. His primary research interest is in the principles and practice of paediatric palliative medicine, and he is increasingly focusing on clinical ethics in children at the end of life. He is honorary Professor in the College of Human and Health Sciences at Swansea University.

Ann Goldman is a paediatrician and is Vice President of Together for Short Lives. Ann was the first ever consultant in paediatric palliative care and, in 1986, established the Symptom Care Team at Great Ormond Street Children's Hospital, which was the first multi-disciplinary paediatric palliative care team. Ann has worked in clinical care for the children and their families, research and teaching, and has been at the vanguard of the development of palliative care services for children nationally and internationally. In 2004, she was awarded The Children's Hospice International Outstanding Leadership award. Ann was presented with the Vittorio Ventafridda Award at the Maruzza Foundation Rome Conference in November 2014. The award recognizes Ann's dedication and expertise in children's palliative care, both professionally and in her academic career.

Adam Rapoport is a general paediatrician with a Masters in bioethics. In 2009, Adam joined the Temmy Latner Centre for Palliative Care at Mount Sinai Hospital as their pediatric consultant. In July 2011, he became the first Medical Director of the Paediatric Advanced Care Team (PACT), the palliative care service at SickKids. PACT provides both inpatient and outpatient palliative care to children with life-threatening illnesses, and their families, including grief and bereavement support. In 2013, Adam became Medical Director at Toronto's first paediatric residential hospice - Emily's House. Adam's academic work focuses on the intersection of his three primary interests' paediatrics, palliative care, and ethics.

Michelle Meiring is the founding director of Paedspal and a Paediatric Palliative Care Consultant. She has over 13 years experience in paediatric palliative care and in the NGO sector. Her task at Paedspal is to provide management oversight and clinical leadership. Michelle is a senior lecturer in Palliative Medicine at UCT, South Africa where she convenes the paediatric elective for the Postgraduate Diploma at UCT and is also the chairperson of PATCH-SA (a national paediatric palliative care network).

Adam Rapoport, Medical Director, Paediatric Advanced Care Team (PACT), The Hospital for Sick Children (SickKids), University of Toronto; Emily's House Children's Hospice, Toronto, Ontario, Canada
Áine Ni Laoire, Senior SpR in Palliative Medicine, Children’s Health Ireland, Crumlin; and The Coombe Women and Infants Maternity Hospital, Dublin, Ireland
Alta Terblanche, University of Pretoria, South Africa
Amy Volans, Clinical Psychologist and Family Therapist, Diana Children’s Community Palliative Care Team, Newham Children’s Community Nursing Service, East London NHS Foundation Trust, UK
Ann Goldman, Paediatrician and Palliative Care Specialist, London, UK
Andy Gray, Division of Pharmacology, Discipline of Pharmaceutical Sciences, University of KwaZulu-Natal, Durban, South Africa
Anna C. Muriel, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute; Department of Psychiatry, Harvard Medical School; Department of Psychiatry, Boston Children's Hospital, Boston, MA, USA
Antoine Bioy, Associate Professor of Psychology, University of Burgundy and Bicêtre Hospital, Dijon, France
Barbara Jones, University Distinguished Teaching Professor, Associate Dean for Health Affairs, and Co-Director for Institute for Collaborative Health Research and Practice, The University of Texas, Austin, USA
Barbara M. Sourkes, Professor of Pediatrics, Stanford University School of Medicine, Kriewall-Haehl Director; Pediatric Palliative Care Program, Lucile Packard Children’s Hospital Stanford, Palo Alto, California, USA
Brian S. Carter, Sirridge Professor of Medical Humanities and Bioethics, University of Missouri-Kansas City, School of Medicine; and Professor of Pediatrics (Neonatology and Fetal Health), Children's Mercy Hospital, Kansas City, Missouri, USA
Bryan Sisk, Division of Hematology and Oncology, Department of Pediatrics, Washington University, St Louis, Missouri, USA
Carol Hlela, Head of Department, Department of Paediatrics and Child Health, University of Cape Town, South Africa
Chana Korenblum, Division of Supportive Care, Princess Margaret Cancer Centre, University of Toronto, and Division of Adolescent Medicine; Department of Pediatrics, The Hospital for Sick Children, Ontario, Canada
Chantal Wood, Centre de la douleur chronique, pôle clinique médicale, Centre Hospitalier Universitaire de Limoges, Limoges, France
Charles Berde, Sara Page Mayo Chair in Pediatric Pain Medicine, Department of Anesthesiology, Critical Care and Pain Medicine, Boston Children's Hospital; Professor of Anaesthesia, Harvard Medical School, Boston, USA
Danai Papadatou, Professor of Clinical Psychology Work setting: Faculty of Nursing, University of Athens, Greece
Daniel Nuzum, Healthcare Chaplain and Clinical Pastoral Education Supervisor, Cork University Hospital; Department of Obstetrics and Gynaecology, College of Medicine and Health, University College Cork; and Cork University Maternity Hospital, Ireland
David M. Steinhorn, Professor of Pediatrics, George Washington University (GW) School of Medicine and Health Sciences; PANDA Palliative Care Program, Children’s National Medical Center, Washington, DC, USA
Dawn Davies, Medical Director,PediatricPalliativeCareProgram, Stollery Children’s Hospital; Associate Professor, Dept. of Pediatrics, University of Alberta, Edmonton, Alberta, Canada
Dilini Rajapakse, The Louis Dundas Centre for Children's Palliative Care, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK
Emily Harrop, Consultant in Paediatric Palliative Care, Helen and Douglas House Hospices, Oxford, UK
Emma Brown, Health Play Specialist , Diana Children’s Community Palliative Care Team, Newham Children’s Community Nursing Service , East London NHS Foundation Trust, UK
Erica Brown, Senior Research Fellow, University of Worcester, UK
Finella Craig, Consultant in Paediatric Palliative Medicine, the Louis Dundas Centre for Children’s Palliative Care, Great Ormond Street Hospital NHS Trust, London, UK
Fiona Rawlinson, Consultant in Palliative Medicine and Postgraduate Course Director, School of Medicine, Cardiff University, UK
Harold Siden, Medical Director, Canuck Place Children’s Hospice, Child and Family Research Institute, BC Children’s Hospital, University of British Columbia, Vancouver, Canada
Ignasi Clemente, Department of Anthropology, Hunter College CUNY, New York, USA
Jan Aldridge, Consultant Clinical Psychologist, Martin House Children`s Hospice, Martin House Research Centre, University of York; Honorary Consultant, Leeds Teaching Hospitals, UK
Jane Riddin, Affordable Medicines Directorate, National Department of Health, Pretoria, South Africa
Jane Zimmerman, Licensed Clinical Social Worker, Stanford Children’s Health, Standford, Palo Alto California, USA
Jennifer Mack, Pediatrics, Harvard Medical School; Pediatric Oncology, Dana-Farber Cancer Institute, Boston, MA, US
Jenny Hynson, Medical Director, Victorian Paediatric Palliative Care Program, The Royal Children’s Hospital, Melbourne, Australia
Jo Laddie, Consultant in Paediatric Palliative Care, Evelina London Children's Hospital, Guys and St Thomas’s NHS Foundation Trust, London, UK
Joan Marston, Global Ambassador, International Children’s Palliative Care Network (ICPCN), Assagay, South Africa
Jori Bogetz, Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Seattle Children's Hospital, Seattle, Washington, USA
Julia Downing, Chief Executive, International Children’s Palliative Care Network (ICPCN), South Africa
Julie M. Hauer, Medical Director, Seven Hills Pediatric Center, Division of General Pediatrics, Children’s Hospital Boston, Harvard Medical School, USA
Justin Baker, Director, Division of Palliative and End-of-Life Care, Director, Hematology/Oncology Fellowship Program, Attending Physician, Quality of Life Service, Memphis, TN, USA
Keelin O’Donoghue, Consultant Obstetrician, Cork University Maternity Hospital; and Senior Lecturer, Department of Obstetrics and Gynaecology, University College Cork, Ireland
Kevin Weingarten, Paediatric Advanced Care Team (PACT); The Hospital for Sick Children (SickKids), University of Toronto, Ontario, Canada
Kimberly Widger, Assistant Professor, Lead Teacher, MN Clinical Nursing Field of Study, Lawrence S. Bloomberg Faculty of Nursing, Toronto, Canada
Lori Ives-Bain, Paediatric Advanced Care Team, The Hospital for Sick Children (SickKids), University of Toronto, Ontario, Canada
Lorna Fraser, Department of Health Sciences, University of York, UK
Maeve O'Reilly, Consultant in Palliative Medicine, St. Luke's Hospital, Dublin; and Children’s Health Ireland, Crumlin, Ireland
Maggie Comac, Clinical Nurse Specialist, Great Ormond Street Hospital Oncology Outreach and Palliative Care Team, Louis Dundas Centre, London, UK
Manuel Rigal, Pediatric Palliative Care Unit, Niño Jesús University Children's Hospital, Madrid, Spain
Marie Twomey, Consultants in Palliative Medicine, St. Luke's Hospital, Dublin; and Children’s Health Ireland, Crumlin, Ireland
Mary Ann Muckaden, Tata Memorial Centre, Homi Bhabha National University, Mumbai, India
Mary Devins, Consultant in Paediatrian, Paediatric Palliative Medicine, Children’s Health Ireland, Crumlin; and The Coombe Women and Infants Maternity Hospital, Dublin, Ireland
Mei-Yoke Chan, Senior Consultant, Paediatric Haematology/ Oncology, Department of Paediatric Subspecialties, KK Women’s and Children’s Hospital, Singapore
Michelle Grunauer, Escuela de Medicina, Colegio de Ciencias de la Salud, Universidad San Francisco de Quito; Pediatric Intensive Care Unit, Hospital de los Valles, Quito, Ecuador
Michelle Meiring, Paediatric Palliative Care Consultant, Red Cross War Memorial Children’s Hospital, The Bigshoes Foundation and the University of Cape Town, South Africa
Myra Bluebond-Langner, Professor and True Colours Chair in Palliative Care for Children and Young People, Louis Dundas Centre for Children’s Palliative Care, UCL-Institute of Child Health, London, UK; Board of Governors’ Professor of Anthropology, Rutgers University, Camden NJ, USA
Nancy Contro, Executive Director, National Center for Equine Facilitated Therapy (NCEFT), Woodside, California, USA
Nokuzola Mndende, Research Associate, University of Free State, Bloemfontein, South Africa
Pamela J. Mosher, Princess Margaret Cancer Centre and the Hospital for Sick Children, Toronto, Ontario, Canada
Pat Carragher, Medical Director to Children’s Hospices Across Scotland (CHAS), Edinburgh, Scotland, UK
Rachel Thienprayoon, Medical Director, StarShine Hospice and Assistant Professor, UC Department of Pediatrics, University of Cincinnati, OH, USA
Rene Albertyn, Senior Researcher and Lecturer, Department of Paediatric Surgery, Red Cross War Memorial Children’s Hospital; University of Cape Town, South Africa
Renee McCulloch, Lead Consultant in Paediatric Pain and Palliative Medicine, NBK hospital, Ministry of Health, Kuwait; Honorary Senior Lecturer, Great Ormond Street Hospital, Institute of Child Health, London, UK
Ricardo Martino, Pediatric Palliative Care Unit, Niño Jesús University Children's Hospital, Madrid, Spain
Richard D. W. Hain, University of South Wales, Welsh Institute for Health and Social Care (WIHSC), Pontypridd, Wales, UK
Richard Langner, Palliative Care for Children and Young People, Louis Dundas Centre for Children’s Palliative Care, UCL-Institute of Child Health, London, UK
Robert Macauley, Cambia Health Foundation, Pediatric Palliative Care, Oregon Health and Science University, Portland, OR, USA
Roxanne Kirsch, Cardiac Critical Care Medicine (CCCU), The Hospital for Sick Children, Toronto, Ontario, Canada
Sanjay Mahant, Associate Professor, Department of Paediatrics, The Hospital for Sick Children (SickKids), University of Toronto, Ontario, Canada
Sara Portnoy, Consultant Clinical Psychologist, University College Hospital; Life Force (Community paediatric palliative care and bereavement team) in Camden, Islington and Haringey, London, UK
Stefan J. Friedrichsdorf, Medical Director, Center of Pediatric Pain Medicine, Palliative Care and Integrative Medicine, Benioff Children’s Hospitals in Oakland and San Francisco; and Professor, Department of Pediatrics, University of California at San Francisco (UCSF), CA, USA
Stephen Connor, Executive Director, Worldwide Hospice Palliative Care Alliance. Fairfax Station, Virginia, US
Sue Boucher, International Children’s Palliative Care Network (ICPCN), UK
Susan Blacker, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada
Tonya Arscott-Mills, Clinical Assistant Professor of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA
Veronica Dussel, Dana-Farber Cancer Institute; Harvard Medical School, Boston, MA, USA