Living with Ageing and Dying

Palliative and End of Life Care for Older People

Edited by Merryn Gott and Christine Ingleton

Contains contributions from a range of leading international experts from different disciplinary backgrounds
Identifies ways forward in improving the end of life experiences of older people by taking a multidisciplinary and international approach
Fills a gap in the current market, addressing an issue of increasing policy priority globally

Living with Ageing and Dying

Palliative and End of Life Care for Older People

Edited by Merryn Gott and Christine Ingleton

Description

Ageing populations mean that palliative and end of life care for older people must assume greater priority. Indeed, there is an urgent need to improve the experiences of older people at the end of life, given that they have been identified as the 'disadvantaged dying'. To date, models of care are underpinned by the ideals of specialist palliative care which were developed to meet the needs of predominantly middle-aged and 'young old' people, and evidence suggests these may not be adequate for the older population group.

This book identifies ways forward for improving the end of life experiences of older people by taking an interdisciplinary and international approach. Providing a synergy between the currently disparate literature of gerontology and palliative care, a wide range of leading international experts contribute to discussions regarding priority areas in relation to ageing and end of life care. Some authors take a theoretical focus, others a very practical approach rooted in their clinical and research experience. The issues covered are diverse, as are the countries in which discussions are contextualised. Those working in both palliative care and gerontology will find the issues and advice discussed in this book hugely topical and of real practical value.

Living with Ageing and Dying

Palliative and End of Life Care for Older People

Edited by Merryn Gott and Christine Ingleton

Introduction, Merryn Gott and Christine Ingleton
Section 1 - What's Different about Dying in Old Age?
1. International trends in circumstances of death and dying amongst older people, Barbara Gomes, Joachim Cohen, Luc Deliens and Irene Higginson
2. The care of older people at the end of life: an historical perspective, Allan Kellehear
3. Anti-ageing and scientific avoidance of death, John A Vincent
4. The challenges of health technology for ageing and dying, Jane Seymour and Merryn Gott
5. The disadvantaged dying: ageing, ageism and palliative care provision for older people in the UK, Merryn Gott, Andrew M. Ibrahim and Robert H. Binstock
6. What do we know about the congruence between what older people prioritise at the end of life and policy and practices?, Liz Lloyd
Section 2 - What Can a Public Health Perspective Bring to Improving the End of Life Experience for Older People?
7. Health promoting palliative care and dying in old age, Bruce Rumbold
8. User and community participation at the end of life, Neil Small and Anita Sargeant
9. Advance care planning: international perspectives, Koen Meeussen, Lieve Van den Block and Luc Deliens
10. New public health approaches to address diversity and end-of-life issues for older people?, Jonathan Koffman
11. Loss and bereavement in older age: developing community-based bereavement support, Amanda Robert and Sinead McGilloway
Section 3 - Involving Carers at the End of Life
12. The changing profile of the family caregivers of older people: a European perspective, Sheila Payne
13. Needs, access and support for older carers, Gunn Grande and John Keady
14. 14 Family carers, palliative care and the end-of-life, Mike Nolan and Tony Ryan
15. Costs of family caregiving, Barbara Hanratty
16. Workforce development: an international perspective on who will provide care, Philip Larkin and Meg Hegarty
Section 4 - The Significance of Place at the End of Life
17. Place matters: an exploration of the role of physical environment in the end of life care, Habib Chaudhury, Gloria Puurveen and Jennifer Lyle
18. Improving care for older people living and dying in long term care settings: a whole system approach, Katherine Froggatt, Kevin Brazil, Jo Hockley and Elisabeth Reitinger
19. The development and implementation of evidence based palliative care guidelines for residential care: lessons for other countries, Deborah Parker
20. Improving environments for care at the end of life in hospitals, Clare Gardiner and Sarah Barnes
Section 5 - Moving Forward: A Debate about Priorities for Research and Service Development
21. End of life care for older people with dementia: Priorities for research and service development, Murna Downs
22. Evidence, evidence and evidence: future priorities for research and service development in improving palliative care for older people, Irene J. Higginson
23. Priorities for research and service development in primary care to improve end-of-life for older people, Scott A. Murray
24. Priorities for specialist palliative care: an Australian perspective, Margaret O'Connor
25. Inter-disciplinary perspectives, Sabine Pleschberger
26. Workforce capacity issues, Jackie Robinson and Christine Ingleton

Living with Ageing and Dying

Palliative and End of Life Care for Older People

Edited by Merryn Gott and Christine Ingleton

Author Information

Merryn Gott joined the University of Auckland in 2009 as Professor of Health Sciences in the School of Nursing. Her PhD is in gerontology and over the last 12 years she has developed an international programme of research exploring palliative and end of life care for older people. She currently holds grants from the Department of Health, the Health Research Council of New Zealand, the Economic and Social Research Council, BUPA, as well as local charities. She has published over 70 journal articles and currently serves on the Editorial Boards of Progress in Palliative Care and the British Medical Journal (Supportive and Palliative Care).

Christine Ingleton is Professor of Palliative Care Nursing in the School of Nursing & Midwifery at the University of Sheffield. She has contributed to 30 research grants and awards totalling over L3.5 million. She has published over 90 outputs in peer reviewed journals and contributed to 6 books on health services research. She has edited 2 best-selling research based textbooks on end of life care.
Christine is Fellow of the European Academy of Nursing Science and Fellow of the Royal Society of Arts. She currently serves on the British Journal of Community Nursing and the British Medical Journal (Supportive and Palliative Care).

Contributors:

Sarah Barnes, School of Health and Related Research, University of Sheffield, UK
Robert Binstock, School of Medicine, Case Western Reserve University, USA
Kevin Brazil, Division of Palliative Care, McMaster University, Hamilton, Canada
Habib Chaudhury, Department of Gerontology, Simon Fraser University, Canada Joachim
Cohen, End-of-life Care Research Group, Vrije Universiteit Brussel, Belgium
Luc Deliens, Department of Public and Occupational Health, VU University Medical Center, Amsterdam, The Netherlands; and End-of-Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
Murna Downs, School of Health Studies, University of Bradford, UK
Katherine Froggatt, School of Health and Medicine, Lancaster University, Lancaster, UK
Clare Gardiner, School of Nursing and Midwifery, University of Sheffield, UK
Barbara Gomes, Department of Palliative Care, Policy & Rehabilitation, Cicely Saunders Institute, King's College London, UK
Merryn Gott, School of Nursing, University of Auckland, New Zealand
Gunn Grande, School of Nursing, Midwifery and Social Work, University of Manchester, UK l Barbara Hanratty, School of Population, Community & Behavioural Sciences, University of Liverpool, UK l Meg Hegarty, Palliative and Supportive Services, Flinders University, Australia
Irene J. Higginson, Cicely Saunders Institute, King's College London and Cicely Saunders International, UK
Jo Hockley, St Christopher's Hospice, London, UK
Andrew M. Ibrahim, School of Medicine, Johns Hopkins University, USA
Christine Ingleton, School of Nursing and Midwifery, University of Sheffield, UK
John Keady, School of Nursing, Midwifery and Social Work, University of Manchester, UK
Orla Keegan, The Irish Hospice Foundation, Ireland
Allan Kellehear, Department of Social & Policy Sciences, University of Bath, UK
Jonathan Koffman, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King's College London, UK
Philip Larkin, School of Nursing, Midwifery and Health Systems, University College Dublin, Ireland & Our Lady's Hospice, Dublin
Liz Lloyd, School for Policy Studies, University of Bristol, UK
Jennifer Lyle, Department of Gerontology, Simon Fraser University, Canada
Sinead McGilloway, Department of Psychology, National University of Ireland, Maynooth, Ireland
Koen Meeussen, End-of-Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
Scott A. Murray Primary Palliative Care Research Group, Centre for Population Health Sciences: General Practice, University of Edinburgh, UK
Mike Nolan, Sheffield Institute for Studies on Ageing, School of Nursing and Midwifery, University of Sheffield, UK
Margaret O'Connor, Palliative Care Research Team, Faculty of Medicine, Nursing & Health Sciences, Monash University, Australia
Deborah Parker, UQ/Blue Care Research and Practice Development Centre, University of Queensland, Australia
Sheila Payne, International Observatory on End of Life Care, Lancaster University, UK
Sabine Pleschberger, Department of Palliative Care and Organisational Ethics, Faculty of Interdisciplinary Studies, University of Klagenfurt, Vienna, Austria
Gloria Puurveen, Department of Gerontology, Simon Fraser University, Canada
Elisabeth Reitinger, IFF Faculty of Interdisciplinary Studies, Alpen-Adria University of Klagenfurt, Vienna, Austria
Amanda Roberts, Department of Psychology, National University of Ireland, Maynooth, Ireland
Jackie Robinson, Palliative Care Services, Auckland District Health Board, New Zealand
Bruce Rumbold, Palliative Care Unit, School of Public Health, La Trobe University, Australia
Tony Ryan, School of Nursing & Midwifery, University of Sheffield, UK
Anita Sargeant, School of Health Studies, University of Bradford, UK
Jane Seymour, School of Nursing, Midwifery and Physiotherapy, Faculty of Medicine and Health Sciences, University of Nottingham, UK
Neil Small, School of Health Studies, University of Bradford, UK
Lieve Van den Block, End-of-Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium; and Department of General Practice, Vrije Universiteit Brussel, Brussels, Belgium
John A. Vincent, Department of Sociology and Philosophy, University of Exeter, UK

Living with Ageing and Dying

Palliative and End of Life Care for Older People

Edited by Merryn Gott and Christine Ingleton

From Our Blog

Do old people matter?

By Merryn Gott and Christine Ingleton A couple of weeks ago one of us (MG) attended the biannual Hospice New Zealand conference in Auckland where there was a discussion session responding to the question 'Do old people matter?' The general feeling amongst delegates was that, of course they matter, or for some, of course we matter. The answer to the question was regarded to be self-evident; no debate was needed.

Posted on January 11, 2013

Read the blog post