Achieving Justice in Genomic Translation
Re-Thinking the Pathway to Benefit
Edited by Wylie Burke, MD, PhD, Kelly A. Edwards, PhD, Sara Goering, PhD, Suzanne Holland, PhD, and Susan Brown Trinidad, MA
Author Information
Wylie Burke, MD, PhD, is Professor and Chair of the Department of Bioethics and Humanities at the University of Washington, Seattle, WA. She is a physician, trained in internal medicine and genetics, whose work focuses on the ethical and policy implications of genetics in medicine, public health and research. She is Chair of the Institute of Medicine Roundtable on Translating Genome-based Research for Health and past President of the American Society of Human Genetics.
Kelly Edwards, PhD, is an Associate Professor in the Department of Bioethics and Humanities, Core Faculty in the Institute for Public Health Genetics. She is also a co-investigator with the NHGRI-funded Center for Genomics and Healthcare Equality, the NCRR-funded Institute for Translational Health Sciences, and the NIEHS-funded Center for Ecogenetics and Environmental Health.
Sara Goering, PhD, is Assistant Professor of Philosophy and member of the Program on Values in Society and the Program on Disability Studies at the University of Washington, Seattle, WA. She specializes in bioethics and her work combines feminist theory, disability studies, and concerns about justice for marginalized populations.
Suzanne Holland, PhD, is Professor of Ethics & Religion and Philip M. Phibbs Research Scholar at University of Puget Sound in Tacoma, WA. She is an Affiliate Professor at University of Washington's School of Medicine, Department of Bioethics and Humanities, and a past Board member of the American Society for Bioethics and Humanities. Her work focuses on issues of justice, gender, new genetic technologies, and the commodification of the human body.
Susan Trinidad, MA, is a qualitative researcher in the Department of Bioethics and Humanities and a co-investigator with the Center for Genomics and Healthcare Equality. Previously, she was Executive Director of Product Development for a company specializing in telephone nurse triage, patient education, and behavior-change counseling services for chronically ill patients.
Contributors:
Wylie Burke, MD, PhD
Department of Bioethics and Humanities
University of Washington
Seattle, WA
Kelly A. Edwards, PhD
Department of Bioethics and Humanities
Center for Genomics and Healthcare Equality
University of Washington School of Medicine
Seattle, WA
Stephanie Malia Fullerton, DPhil
Department of Bioethics & Humanities
University of Washington
Seattle, WA
Sara Goering, PhD
Department of Philosophy, Program on Values in Society
University of Washington
Seattle, WA
Nora B Henrikson, PhD, MPH
Group Health Research Institute
Seattle WA
Suzanne Holland, PhD
Department of Religion
University of Puget Sound
Tacoma, WA
Rosalina James, PhD
Department of Bioethics & Humanities
University of Washington
Seattle, WA
Maureen Kelley, PhD
Bioethics Division, Department of Pediatrics
University of Washington School of Medicine
Seattle, Washington
Patricia Kuszler
Anne-Marie Laberge, MD, PhD
Medical Genetics Division, Centre Hospitalier Universitaire Sainte-Justine
Department of Pediatrics, Université de Montréal
Montréal, Québec, Canada
Martine D. Lappé, PhD
University of California, San Francisco
San Francisco, California
Mitzi L. Murray, MD
University of Washington
Seattle, WA
Nancy Press
Catharine Riley, MPH, PhD candidate
Institute for Public Health Genetics
School of Public Health
University of Washington
Helene Starks, PhD, MPH
University of Washington
Dept. of Bioethics and Humanities
Seattle, WA
Holly Tabor
Susan Brown Trinidad, MA
Department of Bioethics & Humanities
University of Washington
Seattle, Washington
David L. Veenstra, PharmD, PhD
Pharmaceutical Outcomes Research and Policy Program (PORPP), and
Institute for Public Health Genetics
University of Washington
Seattle, WA
Benjamin S. Wilfond, MD
Treuman Katz Center for Pediatric Bioethics
Seattle Children's Research Institute
Department of Pediatrics, University of Washington School of Medicine
Seattle, WA