Navigating Life with Parkinson Disease
Sotirios Parashos, Rose Wichmann, and With Todd Melby
Table of Contents
CHAPTER 1: WHAT IS IT? WHY ME?
What is it?
What Causes Parkinson Disease?
What Are the Stages of the Disease?
Who Gets the Disease? Why Me?
Is There Help?
The Outlook for People with Parkinson Disease
CHAPTER 2: THE MOTOR SYMPTOMS
Loss of Balance, Freezing, and Falling
Other Motor Symptoms
Motor Symptoms That May Occur as a Complication of Treatment
CHAPTER 3: THE NON-MOTOR SYMPTOMS
CHAPTER 4: DIAGNOSIS
CHAPTER 5: HOW WILL MY LIFE CHANGE?
Reacting to the Diagnosis
Seeking More Information
CHAPTER 6: DISEASE MANAGEMENT: GENERAL PRINCIPLES, MEDICATIONS, AND SURGERY
What Are Our
Weapons in Treating Parkinson Disease?
What if I Don't Want to Start Medications Right Away?
Brain Surgery for Parkinson Disease
CHAPTER 7: DISEASE MANAGEMENT: REHABILITATION THERAPY, ASSISTIVE DEVICES, AND ADAPTIVE EQUIPMENT
Assistive Devices and Adaptive Equipment
CHAPTER 8: DISEASE MANAGEMENT: SPECIFIC SYMPTOMS
Managing Tremor, Bradykinesia, and Rigidity
Managing Balance Challenges and Freezing of Gait
Managing Weakness and Fatigue
Managing Dyskinesia, Dystonia, and Wearing Off
Managing Speech and Communication Problems
Managing Excessive Salivation, Drooling, and Thick Secretions
Managing Swallowing Problems
Managing Vision Problems
Difficulties with Bladder Control
Dealing With Loss of Mobility in the Advanced Stages
Dealing With Mild Cognitive Symptoms
Managing Confusion, Hallucinations, and Dementia
Dealing With Apathy, Depression, Impulsivity, and Anxiety
Managing Sleep Changes in Parkinson Disease
Managing Orthostatic Hypotension
Keeping Skin in Shape
Medications to Avoid
CHAPTER 9: LIFESTYLE CHANGES AND DISEASE MANAGEMENT
The Importance of Exercise
Using Complementary Therapies
The Power of Music and Dance
Getting Involved in the Parkinson Community
CHAPTER 10: RESEARCH
Why Should I Consider
Participating in Research?
What Kinds of Research Studies May Be Open to a Person With Parkinson Disease?
The "Informed Consent"
Where Can I Learn More?
CHAPTER 11: LEGAL AND FINANCIAL ISSUES
HIPAA-What Information Do I Have Access to and How to Make the Most of It
Maintaining Tracking Information through Electronic Medical Records
CHAPTER 12: THE CAREPARTNER
Coping With Caregiver Stress and Fatigue
Planning for the Future
CHAPTER 13: COMMUNITY INVOLVEMENT, ADVOCACY, AND RESOURCES
A Passion for Advocacy
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